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Motor Neurone Disease (MND) is a progressive disease that attacks the motor neurones, or nerves, in the brain and spinal cord. This means messages gradually stop reaching muscles, which leads to weakness and wasting.

Despite my medical background, I wish to try and show life with MND not only in its devastating progress but in its spiritualistic and humanistic presence. Through my relationships with people living with MND and their families and carers, which will grow and develop as the project proceeds, I hope to rebuild the lost biography that diagnosis brings, to try to understand the grieving process that starts with diagnosis and to help bring some peace and acceptance to those involved. Where hope appears to have been snatched away, to show how others take on the fight and get on with their lives taking each day as if it were their last, achieving great affirmation and strength in their humanity. 

I want to understand how my presence as an outsider, intruding into the very personal experience of such an illness with my camera and lens, that for many carries a life expectancy of 3-5 years from diagnosis, might affect them and their journey. I have already found great humility in the face of such courage. 

The MNDA association can be found on: